What is albinism?

Albinism is a genetic condition caused by recessive genes inherited from both parents. It results in the lack of the ability to make pigment, leading to very pale skin, eyes and hair. People with albinism, often called “albinos,” have varying degrees of visual impairment, in addition to lack of pigment. As a result, many albinos are legally blind, and are extremely light sensitive. Albinism is a stable condition, and with appropriate protection from UVA and UVB rays, people with albinism can enjoy a normal lifespan. Although most people are familiar with the term “albino,” many people within the community prefer to use the phrase “person with albinism.”  We have used both throughout the website in recognition of the widespread familiarity with the former term. For more information on albinism, click here to visit the National Organization for Albinism and Hypopigmentation’s (NOAH) webiste.

How rare is albinism?

In the United States, it is estimated that 1 in 17,000 people have albinism.  It is much more common in areas of East Africa, and can be as high as 1 in 1,000.

Why is albinism more common in East Africa?

Albinism is more common in East Africa because rural tribes have a more isolated genetic pool.

Can people with albinism drive cars?

Most people with albinism are significantly visually impaired, and cannot drive.  However, many people can drive using adaptive technology.

What does asante mean?

Asante (ah-SAHN-tay) means thank you in Swahili.

What’s wrong with the word “albino?”

While it is a commonly used term, it labels the person, and identifies them by their condition.